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Senior Advisor Subject Matter Expert (SME) with Patient Advocacy Expertise for the NINDS Ultra-rare Gene-based Therapy (URGenT) Network
In plain English
National Institutes of Health seeks one senior advisor with patient advocacy expertise for its ultra-rare gene therapy advisory board. Expect up to eight meetings yearly of one to two hours plus occasional calls. Restricted to small businesses; due November 2, 2026.
Description
COMBINED SYNOPSIS / SOLICITATION (COMPETITIVE) Title: Senior Advisor Subject Matter Expert (SME) with Patient Advocacy Expertise for the NINDS Ultra-rare Gene-based Therapy (URGenT) Network (i) This is a combined synopsis/solicitation for commercial products or commercial services prepared in accordance with RFO Part 12. This announcement constitutes the only solicitation. Offers are being requested and a separate written solicitation will not be issued. The solicitation number is 7571PS27Q00015 issued as a Request for Quote for a Senior Advisor to act as a Subject Matter Expert (SME) with Patient Advocacy Expertise The Government reserves the right to make one award, multiple awards, or no awards as a result of this solicitation. This acquisition is set-aside for small business concerns. This solicitation incorporates provisions and clauses by reference. The full text of provisions and clauses may be accessed electronically at www.acquisition.gov. The Defense Priorities and Allocations System (DPAS) are not applicable to this requirement. (ii) This requirement is for the following services: NINDS is seeking to procure a highly experienced executive-level, drug discovery and development Senior Advisor 2 Subject Matter Expert (SME) with experience in the area of Patient Advocacy to provide feedback to the NINDS program leadership and technical guidance on drug discovery and development projects within the URGenT portfolio. The Contractor will serve as a member of the URGenT External Counselor Board (ECB), which provides strategic guidance on URGenT projects and on occasion other NINDS drug discovery and development programs. (iii) Description of requirement: The NIH is seeking to procure a highly experienced executive-level Senior Advisor 2, drug discovery and development subject matter expert with experience in the area Patient Advocacy to provide feedback to the NIH program leadership and technical guidance on drug discovery and development projects as members of URGenT ECB to NINDS Leadership programs. The Contractor shall provide this support while serving for URGenT ECB. The ECB may meet up to 8 times/year for approximately one - two hours and on an ad-hoc basis for milestone and/or introductory calls of URGenT projects via teleconference. ECB members may be requested to attend one on site visit to the NIH campus yearly for ECB meetings. See Attachment #1 - Statement of Work (SOW) for more information. (iv) The Government anticipates award of a Fixed Price purchase order for this acquisition, and the anticipated base period of performance is: Base: 11/06/2026 � 11/05/2027 Option Year 1: 11/06/2027 � 11/05/2028 Option Year 2: 11/06/2028 � 11/05/2029 (v) The provisions a FAR 52.252-1, Solicitation Provisions Incorporated by Reference (Feb 1998), applies to this acquisition. This solicitation incorporates one or more solicitation provisions by reference, with the same force and effect as if they were given in full text. Upon request, the Contrac…
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